Amy Rivera (featured in the center of the photo above) was born with Primary Lymphedema, however she was misdiagnosed for over 30 years, leaving her disabled and isolated. Amy thought she was the only one who was suffering in silence. But after learning the truth about her condition, Amy realized that this community needed a voice.

She established the Ninjas Fighting Lymphedema Foundation (NFLF) to build relationships within the lymphedema community and to ensure that no one suffers alone. NFLF helps patients, schools, hospitals, non-profits, and communities big and small to better respond to the lymphedema epidemic.

Here at Ninjas Fighting Lymphedema Foundation:

We educate, advocate and empower individuals and organizations to take an active role in creating awareness and spreading hope.

Our daily mission is to give a voice to everyone fighting lymphedema. We are a growing community of survivors and thrivers who refuse to let a diagnosis slow us down. We provide a forum for lymphedema education and a growing resource library for patients and healthcare workers alike.

This condition is often under-diagnosed, even by experienced medical professionals. Our goal is to increase awareness by providing much-needed education and support for those living with lymphedema, as well as their families and their caregivers.

We have tasked ourselves with changing the face of lymphedema care from the ground up!

And this change starts with YOU.